MECFS Blog: A Polling Day Post – Taking Responsibility For That Which Affects Us

MECFS Blog: A Polling Day Post – Taking Responsibility For That Which Affects Us

It’s 3 hours into polling day here in the UK. At 10pm local time the booths will close and I will be waiting with baited breath for the outcome of the most closely called election in British history.  Lying here on my sofa in silence this morning, I’ve been thinking about what to write.  It’s … Continue reading

MECFS Blog: Open Call For Comments – How Do I Know I’ve Got MECFS?

MECFS Blog: Open Call For Comments – How Do I Know I’ve Got MECFS?

Like many of us with CFSME I searched on the internet before and during the time I was officially diagnosed by my GP and the ME Clinic. It was helpful in identifying symptoms that I immediately recognised in myself. Eventually, on the day Dr Lovely told me I had Post Viral Fatigue Syndrome and later … Continue reading

MECFS Blog: Applying For A Council House – Post 2 – The Paperwork

MECFS Blog: Applying For A Council House – Post 2 – The Paperwork

In this post  I explained that I’m at the start of a process to apply for a council house here in the UK.  Here’s what I did last week: 1. Went onto my Council’s website and used their online information to guide me about what to do. I wrote down some notes to help with brain … Continue reading

MECFS Blog: Applying For A Council House – Post 1

MECFS Blog: Applying For A Council House – Post 1

Those of you who follow this blog ( thank you so much by the way! ) and live outside of the UK might not know about the UK and Council Housing – or Social Housing as the Politically Correct call it. I’m going to call it Council Housing.🙂 I made a big decision last week. It’s … Continue reading

MECFS Blog: Activity Rest Sleep and Your Other Symptoms Chart

MECFS Blog: Activity Rest Sleep and Your Other Symptoms Chart

MECFS Activity and Symptom Tracking Weekly Diary PDF File – click to open Sooner or later someone like your Doctor or someone in the UK benefits system will ask you to say what your MECFS symptoms are.  In the UK ME Clinics use an Activity, Rest and Sleep chart to establish your baseline of activity … Continue reading

MECFS Blog: NO MORE WELFARE CUTS – ELECTION 2015

MECFS Blog: NO MORE WELFARE CUTS – ELECTION 2015

 Right click on the image to download then share   right click on the image to download then share right click on the image to download then share right click on the image to download then share right click on the image to download then share  right click on the image to download then share  right … Continue reading

MECFS Blog: Essential Ingredients On The New Shopping List

MECFS Blog: Essential Ingredients On The New Shopping List

A fab follower of this blog has asked about what recipes I use on the ‘new’ regime of trying to tackle inflammation AND pre-diabetes. I know – I like it complicated.  A brief recap: I’ve been forced to analyze my diet in minute detail because I’ve been told I have to tackle pre-diabetic symptoms. During … Continue reading

MECFS Blog: If Research Is True – We Need To Reduce Bodily Inflammation.

MECFS Blog: If Research Is True – We Need To Reduce Bodily Inflammation.

Last week I had a eureka moment about bodily inflammation caused by our immune systems being over-activated. In my case I’m also making a link between the research about an MECFS body being flooded with the immunological response called a Cytokine and research that shows it is this very same inflammatory response which can produces pre-diabetes, … Continue reading

MECFS Blog: The MECFS Body and Inflammatory Cytokines That Produce Diabetes

MECFS Blog: The MECFS Body and Inflammatory Cytokines That Produce Diabetes

I do a lot of reading around MECFS. Some of it is more understandable than others but once in a while a piece of research or an article or a conversation or a throwaway comment can make something ‘click’. This morning I was browsing the internet and I read this article: http://chriskresser.com/how-inflammation-makes-you-fat-and-diabetic-and-vice-versa I was lying … Continue reading

MECFS Blog: More on GET. Graded Exercise For Dummies or GET 101

MECFS Blog: More on GET. Graded Exercise For Dummies or GET 101

I’ve wanted to write this post for a while. Here goes! I’ve been doing Graded Exercise Therapy (GET) via an NHS ME Clinic since September 2014.  Before I started, I was aware of the issues around GET. If you click on the tag “Graded Exercise Therapy and MECFS” you’ll read all the previous posts I’ve … Continue reading

MECFSBlog: Losing Weight With MECFS – An Update

MECFSBlog: Losing Weight With MECFS – An Update

If you follow this blog, you’ll know that since September 2014 I have had a Type 2 diabetes scare. As a result I’ve been told I must lose weight.  If you follow the category “MECFS and Diabetes” (on the right hand side of the page) you can read all the posts on this subject since … Continue reading

MECFS Blog: Pictures Describe Our Illness Better Than Words

MECFS Blog: Pictures Describe Our Illness Better Than Words

The furore about the name SEID has made me think about the importance and inadequacy of words.  Specifically the inadequacy of language to describe MECFS symptoms. Take the word “tired” and the word “sleep”, for most people, including medical professionals, both of these words describe symptoms but they have an associated meaning that sounds benign. … Continue reading

MECFS Blog. Losing Weight – Calories Per Day Adjustment & Fish and Veggie Diets

MECFS Blog. Losing Weight – Calories Per Day Adjustment & Fish and Veggie Diets

Since the last time I posted I’ve had appointment 2 with the NHS dietician who is helping me lose weight to prevent me from going into type 2 diabetes.  Boxing Day 2014 was the last day I ate meat or poultry. Since then I’ve been on a piscetarian diet, which means that I eat fish but … Continue reading

MECFS Blog: SEID – ME Baby Out With The Bathwater ?

MECFS Blog: SEID – ME Baby Out With The Bathwater ?

The US IOM has published a report into reclassification and renaming of the condition CFSME suggesting it be called SEID.  I am writing from the UK and therefore my understanding of the considerably different history of MECFS in the US is not from direct experience. It is necessarily patchy and reliant on US based media, … Continue reading

MECFS Blog:  What’s Made A Change and Signs That Things Are Improving

MECFS Blog: What’s Made A Change and Signs That Things Are Improving

My counsellor said recently; “I think things are getting better for you – you seem to have more energy.”  My answer: “Really, what have you noticed?” was a genuine question – no sarcasm involved. “Well, I’ve noticed that you are talking about doing more things,” was her reply. I took this comment as a compliment. … Continue reading

MECFS and Emotions: Anticipatory Grieving, Grief and The Impact on MECFS

MECFS and Emotions: Anticipatory Grieving, Grief and The Impact on MECFS

This post that is heart felt and about grieving. If you are avoiding other’s emotions in favor of keeping your symptoms at bay, it’s understandable if some of you might not want to read on. If you are reading this without reading the rest of this blog, I’m writing about anticipatory grieving and grief because … Continue reading

Diabetes and MECFS: Dietician First Appointment or What I Didn’t Know About Food 101

Diabetes and MECFS: Dietician First Appointment or What I Didn’t Know About Food 101

It seems grossly off the point to write about anything other than the rightful furore regarding the press’s interpretation of the recent PACE trial for MECFS patients but I had my first appointment with a dietician today and putting the international outrage to one side it seems as good a time as any to blog about what … Continue reading

Women and MECFS: Response To ActionForME – How Monthly Cycle Affects Symptoms

Women and MECFS: Response To ActionForME – How Monthly Cycle Affects Symptoms

Warning: this post is graphic in the descriptions it gives of gyne, sexual and hormonal symptoms of MECFS experienced by the author. If you are of sensitive disposition look away now!  The UK based ME Charity ActionforME has a Facebook page .On 14th January they asked their followers this question: “Some of the women in our … Continue reading

MECFS Blog: Analysis Of Today’s Update on PACE Trial for CBT and GET

MECFS Blog: Analysis Of Today’s Update on PACE Trial for CBT and GET

In the UK the primary treatment option for MECFS within the National Health Service run specialist ME services is a combination of Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET).  These might be offered in conjunction with Specialist Medical Care (SMC) which includes GPs prescribing pain medication and giving general advice about how to … Continue reading

MECFS Blog: A Good Day – A Positive and Interesting Graded Exercise Review

MECFS Blog: A Good Day – A Positive and Interesting Graded Exercise Review

I’ve posted about Graded Exercise a few times in this blog. You can find the posts by following the tag “Graded Exercise and MECFS” which will bring up all the posts about it together in one page.  I  have been to-ing and fro-ing with Graded Exercise (GE or GET) as a treatment option. Most of … Continue reading

MECFS Blog: Personality Sickness – Challenging MECFS As An Illness For High Achievers.

MECFS Blog: Personality Sickness – Challenging MECFS As An Illness For High Achievers.

I have 2 graduate qualifications in psychological fields so when I read things about personality or the psychology and MECFS I’m naturally drawn to considering them from a personal perspective – i.e. does that relate to me in some way – and a critical perspective – what does my understanding of psychology bring to this.  … Continue reading

MECFS Blog: Two Minor Victories – Dietician and ME Clinic to GP Communication

MECFS Blog: Two Minor Victories – Dietician and ME Clinic to GP Communication

It’s the start of the weekend and I’m celebrating two victories which are making me feel really good, happy and positive. They may be minor victories in the grand scheme of things but small things that make me feel like my treatment for MECFS is being well supported is like someone giving me a push … Continue reading

MECFS Blog: What’s The Deconditioning Hypothesis About The Cause Of ME?

MECFS Blog: What’s The Deconditioning Hypothesis About The Cause Of ME?

Anyone with MECFS or who knows someone with MECFS knows that the illness is one that ravages a person inside and out. It is more often than not long lasting, and it has many different symptoms all of which makes the sufferer feel very ill indeed. However the presence of the Deconditioning Hypothesis remains a … Continue reading

MECFS Blog: What Helps – Coping With MECFS – The Top 5 Things That Make A Difference

MECFS Blog: What Helps – Coping With MECFS – The Top 5 Things That Make A Difference

When I was first diagnosed with MECFS I started reading blogs about the illness found on the internet. Some of those blogs are listed on the left hand side of the landing page so you can have a look at them too.  Finding the community of people writing about ME helped to frame and understand … Continue reading

MECFS Blog: Ending My Job Part 3 – The Workplace and MECFS

MECFS Blog: Ending My Job Part 3 – The Workplace and MECFS

I met a woman socially in a dinner party where some people there had ME. She was warm, bubbly, friendly and approached me with a smile and her hand extended. I smiled back at her as we introduced ourselves. The very next thing she said was: “Are you working?” It took a moment to reply, … Continue reading

MECFS Blog: Alcohol, Smoking, Addictions and Changing To A Piscetarian Diet 101

MECFS Blog: Alcohol, Smoking, Addictions and Changing To A Piscetarian Diet 101

It wasn’t too bad – Xmas that is. There was fun, family and friendship. There were presents exchanged, gifts given and generosity abounded. The extended family weren’t too exhausting, I enjoyed a lot of the two days and ate, drank non alcoholic drinks and was merry. It was one of the best Xmas’s for a … Continue reading

MECFS Blog: Problems With Socialising At Christmas – It’s Not You, It’s ME.

MECFS Blog: Problems With Socialising At Christmas – It’s Not You, It’s ME.

Other people who write ME blogs are posting blog posts about this time of year that I read via my blog’s ‘Reader’ section.  I’ve been struck by how similar posts are about the problems people are already experiencing or expecting with the expectation to socialise over the festive period. I know how you feel. I’m … Continue reading

MECFS Blog: New Research Immunological Irregularities In ME Patients & Suggest Link To Diabetes?

MECFS Blog: New Research Immunological Irregularities In ME Patients & Suggest Link To Diabetes?

To balance f&cked off Friday here’s fascinated Friday!  A piece of research has been published which looks like it has potential to be one of those ground breaking studies that hint at what’s going on biologically for MECFS patients. Yessss! It’s been so long to wait but inch by inch these ground breaking studies are starting … Continue reading

MECFS Blog: Diabetic Test Results Are Back & What It Means For ME

MECFS Blog: Diabetic Test Results Are Back & What It Means For ME

This post  talks about how out of the blue 3 months ago I’d been given the news by my GP that my fasting blood glucose levels indicated I am pre-diabetic.  Since this unexpected addition to the arsenal of general health problems since having ME I’ve been on a crash course about diabetes generally and how your … Continue reading